Seeq Privacy Policy

Effective date: August 29, 2016

This privacy policy governs your use of the software application Seeq ("Application") created for mobile devices by members of the Pickrell Lab at the New York Genome Center. The Application informs users about the science of genomics and serves as a portal for people who may want to contribute to our understanding of how genes influence human health and behavior.

The New York Genome Center ("we" or "us") values the privacy of the Application's users, and we are always striving to improve our user experience. We prepared this Privacy Policy to describe our information practices and, in particular, how we collect, use and share the Personal Information that we gather through the Application.

By using the Application, you are consenting to our use of your information as set forth in this privacy policy, now and as may be amended by us. If you reside outside the United States or use the Application while traveling outside the United States, please note that your information will be transferred, processed and stored in the United States under United States privacy standards, which may be less protective of your privacy than laws of your own country.


How We Collect and Use User Information

We collect Personal Information through the Application. We define the term "Personal Information" to mean any information that we directly associate with a specific person, or that reasonably can be used to identify a specific person. For example, this includes your name, home address, email address, questionnaire responses, and any other information that we tie to these elements.

Personal Information does not include "aggregated information", which is information that we collect about a group or category of persons or services. This Privacy Policy does not apply to our collection, use or disclosure of aggregated information.

We may either collect information when you choose to provide it to us or automatically through your use of the Application.

Information You Provide: We collect Personal Information you provide, for example when you enter the information into form fields in the Application. The following describes the types of information you may provide to us.

Information Collected Automatically: We use various technologies to collect other types of data that do not directly reveal your identity ("Other Information"). If we associate Other Information with Personal Information, we will treat the combined information as Personal Information in accordance with this Privacy Policy.

As is true of most Applications, we gather certain information automatically and store it in log files. This information may include IP addresses, device type, internet service provider, operating system, date/time stamp and/or clickstream data. We generally only use this data for purposes such as security, fraud detection, and protecting our rights. We may also use the information for analytics purposes to help us monitor the performance of the site and ensure that users do not experience problems with access or functionality. The Application does not gather information about the location of your mobile device.

Additional Uses of Personal Information: In addition to the uses described above, we may use your Personal Information for the following purposes:

How We Disclose User Information

As a general rule, we will not share information provided by you or automatically collected by the Application with third parties. However, we will disclose your Personal Information in the following limited circumstances.

Service Providers: We also may give trusted service providers access to the Application, and by extension to your information, in order to obtain technical services or support, such as our payment processor or hosting services. These service providers will be bound by the obligation of confidentiality set forth in our agreements and this privacy policy.

Consent: We will disclose your Personal Information when you have provided consent, such as when you add a friend to your profile. Please note that by registering for an account your user name will be visible to other users who search for you. If you provide consent, users will be able to access your profile information, including potentially your ancestry and microbiome information, if you participate in the research study. We are not responsible for the practices of third party users to whom you provide access to your information. Please use careful consideration before sharing information with third parties.

Legal Process, Safety and Terms Enforcement: We will disclose your Personal Information as required by law (such as to comply with a subpoena or similar legal process), or if we believe in good faith that disclosure is necessary to protect our rights, protect your safety or the safety of others, investigate fraud, or respond to a government request.

Business Transfers: Your Personal Information may be disclosed as part of a corporate reorganization and could be transferred to a third party as one of the business assets in such a transaction. It may also be disclosed in the event of insolvency, bankruptcy or receivership. You will be notified via email and/or a prominent notice of any change in ownership or uses of Personal Information, as well as any choices you may have regarding Personal Information about you.

How to Access and Update Your Information

You may review your Personal Information through the Application. If you wish to uninstall the Application, you may do so by using the standard uninstall processes on your mobile device. If you uninstall the Application, no new information will be collected. We will continue to store your previously collected individualized data indefinitely unless you advise us to delete it.

You may contact us at to request that we delete your data and we will respond in a reasonable time.

Children's Privacy

We do not knowingly collect, solicit data from or market to children under the age of 18. If a parent or guardian becomes aware that his or her child has provided us with information without their consent, he or she my contact us at and we will delete the information in a reasonable time.

Updates to the Privacy Policy

This privacy policy may be updated from time to time for any reason. You are advised to consult the effective date above to determine if any changes have been made since your last review, as continued use is deemed approval of all changes. If we make any material changes in the way we use your Personal Information, we will notify you by sending you an e-mail to the last e-mail address you provided to us or by prominently posting notice of the changes on the Application.

How to Contact Us

If you have any questions regarding privacy while using the Application, or have questions about our practices, please contact us via email at